“How are you doing?” A seemingly innocuous question. At a minimum, it’s a conversation starter. It usually follows the obligatory “hello,” “hi,” or “hey.” But lately, it feels like a landmine. Do people want me to just say, “I’m okay,” so they can move along with their day, unbothered, with no emotional investment? Or are […]
Author: Rachel Lynch
“In All Things Give Thanks”
One full week of treatment down — five more to go. So far, Mike is tolerating it incredibly well, with only mild symptoms. We know it’s still early, but we’re calling that a win. The weather is warming up, but not so much that I can’t enjoy a gentle stroll around the hospital while he’s […]
What Not to Say When Someone Has Cancer (or Any Other Awful Diagnosis)…and What To Say Instead
This morning I went in for my annual mammogram. You know, the appointment where you’re already feeling vulnerable because you’re topless, squished, and making awkward small talk with a stranger. The tech was nice – a little chatty, but nice. We got to talking about walking, and when she mentioned a local pond she likes […]
Mike’s First Three Days of Radiation and Chemo
So far, we’re relieved to say that Mike’s symptoms have been relatively mild. He’s mostly just very tired—understandably so—and has had some mild nausea, but the anti-nausea meds are helping quite a bit. We know there may be tougher days ahead, but for now, we’re grateful for a gentle start. We’ve been doing our best […]
Radiation + Chemo Treatment Day 1
Mike began radiation treatment yesterday morning. He didn’t feel the actual x-rays themselves, and the treatment only took about 15 minutes. He remained fairly alert and didn’t experience TOO much fatigue yesterday afternoon. We even stopped at the Lexington Mill Pond for a brief walk, just to get out and get some nature therapy. We […]
Final Approach
“Ladies and gentlemen, we’ve begun our final descent to our destination. Please ensure your seatbacks are upright and your seatbelts are fastened. Thank you.” As my flight began its final approach to Columbia on Friday, it struck me how much that message is exactly how I feel heading into Mike’s treatment. The takeoff was really […]
The Path
This week I am blessed to be on a wellness retreat in the desert. I had set this up several months before our world was knocked off kilter with Mike’s diagnosis, and I almost cancelled it several times before ultimately deciding that since we’re still in a holding pattern waiting for treatment to start that […]
Radiation Planning
We went Monday so that Mike could be fitted for his radiation mask. They also did an MRI so they’ll be able to determine exactly where to target the radiation. We will meet the oncologist Thursday to learn more about the chemo treatment plan. We do know that chemo will be in pill form, and […]
Smiles
“If you see someone without a smile, give ‘em yours.” – Dolly Parton The other day I just needed to get out of the house. I hadn’t been shopping in a while, so I thought it might be nice to just go out and calm my racing thoughts with some new clothes. New clothes always […]
A New Phase of the Journey
I guess we’ll need a new countdown now, because we got a call from Dr. Engh last night. He has enough information from pathology from Duke to fully diagnose Mike’s tumor as a grade 3 astrocytoma with wIDH. Not the news we were hoping for, as it is a more aggressive tumor, classified as having […]
T+27 Days After Mike’s Brain Surgery
Still no updates on pathology or when Mike will begin radiation therapy, so I thought I’d change things up a bit today on this here little blog (I suppose I’m a blogger now, how weird is that?). When someone we love suddenly has their world shattered by an event like this, whether it’s a loss […]
T+25 Days After Mike’s Brain Surgery
This weekend Mike and I celebrated our 22nd anniversary. 22 years that seem to have breezed by! We’ve been through a lot these past 22 years, but Mike’s brain tumor has definitely been the hardest challenge we’ve had to face together. What did we do to celebrate? Well…Mike went with me to Publix and he […]
T+23 Days After Mike’s Brain Surgery
23 days and every day still brings improvements. His stride continues to improve when he walks. His face is less droopy, and he’s starting to get some feeling back on the left side. His left arm and hand also continue to improve – he was able to put together a shower chair Thursday without any […]
T+21 Days After Mike’s Brain Surgery
I genuinely wish I had more of an update for everyone 3 weeks to the day after Mike’s brain surgery! We are still waiting on pathology results, and we’re still waiting for home health to be approved so Mike can continue his occupational and physical therapy. In the meantime, I’ve had to go back to […]
T+19 Days After Mike’s Brain Surgery
That smile!!!! For the last few weeks that left side just wasn’t cooperating with Mike’s smile game, and I was starting to get used to the lopsided grin, but his entire smile is back!!! We’re still seeing small changes every day, and he continues to improve. Still no news on pathology, but home health is […]
T+18 Days After Mike’s Brain Surgery
What a weekend! Saturday was the big coming home – so after the discharge process we took it easy the rest of the day. Mike spent all day with the dogs, we sat out on the porch for a good chunk of the afternoon, and we called it an early night. We, of course, had […]
T+16 Days After Mike’s Brain Surgery – FINALLY HOME!!!!!
Today is the DAY y’all! Today is the day we’ve been training for the last 2+ weeks. Mike came home today! They sent him off to Ride the Wind by Poison: And the girls were absolutely DELIGHTED to have him home!!!! The past few weeks have been a whirlwind – I feel like we’ve been […]
T+15 Days After Mike’s Brain Surgery
I just got home from packing up most of Mike’s belongings because at 10:00 AM tomorrow morning the discharge process will begin! I don’t know that either one of us will sleep a wink tonight because we’re so ecstatic. Now that he’s off the walker, there really isn’t much we need to do to prep […]
T+14 Days After Mike’s Brain Surgery
Y’all notice anything missing??? That’s right…NO WALKER! We just took a couple of laps around the building! I couldn’t be more excited to see him walking on his own. In other news…guess who’s busting out and coming HOME Saturday?!?!? The big guy is officially coming home the day after tomorrow. I know 3 little fluffer […]
T+13 Days After Mike’s Brain Surgery
Today Mike had OT and PT all day until 5:00. So I took the opportunity to take a much needed rest day and just zoned out for a while. I had some books and some Netflix that I desperately needed to get caught up on (I wasn’t crying…or screaming…much). Yesterday was a mixed bag. Mike […]
T+12 Days After Mike’s Brain Surgery
Monday was a full day of therapy. Everyone, absolutely everyone, that sees how well Mike is moving tells us that they doubt he will be in rehab much longer. In fact, the facility therapists, nurses, doctors and case manager will all consider him in their meeting today – HOPEFULLY that means he’ll be busting out […]
T+11 Days After Mike’s Brain Surgery
Yesterday was Easter! It was a gorgeous day. Our friend Mandy dropped of a delicious roast and a giant pan of scrumptious mac n cheese (she knows me so well!), so we had a wonderful Easter dinner, complete with rolls and strawberry shortcake, courtesy of my mom. We brought little Maya, who barked at anyone […]
T+9 Days After Mike’s Brain Surgery
Today was Mike’s first full day of rehab, and he had both occupational therapy and physical therapy. He was done by noon! One of their goals this week is to start walking without the walker. The facility doctor stopped by and said he was doing so well that he didn’t think Mike would be there […]
T+8 Days After Mike’s Brain Surgery
…well, from LMC, anyway. Today is moving day! Still waiting for official discharge, but we’re busting out today by noon and will be checking in to Mike’s 5 star resort rehab center in Cayce. Not sure what that process will look like or how long it will take, so please give me until tomorrow to […]